We would like to introduce ourselves, my name is Mark, and my wife is Fran. We have two children, a 19 year old boy named Ryan and a 17 year old girl named Kaitlin. Very early in Kaitlin's life we were told she was diagnosed with Turners.
Kaitlin was born with swollen feet, the pediatrician said she'd grow out of that in a few months. She did not, and I remember my wife nearly forcing the pediatrician to explain why (never question a mother's intuition!). The doctor's response was that he could only think of one thing to test for, but was sure that was not the cause. Before we knew it we were learning about karyotypes and chromosomes. All of a sudden my perceived strength in science was overwhelmed with conflicting, outdated information and incomprehensible medical terms. I was confused about what to do, and concerned about how to make sure my daughter would get what she needed.
Fortunately we heard about the TSS support group and went to a meeting in Albany. It was a great way to learn more about TS and to make sure the right resources were available for my daughter. As my daughter grew, and the resources of the TSS group improved, we were provided with more information in a format that was readable and understandable.
Today my daughter is getting ready for college. I am comforted in knowing that she is growing into a woman that will continue to have the support of the TSS. I think she'll find this resource invaluable as she learns to manage her health and ongoing life issues.
